Greetings and salutations.
First of all, an apology for my prolonged absence. Life has been a touch wild and very busy, and as usual it’s a balancing act of many, many priorities. However, I’ve missed writing desperately, and want to keep going.
This brings me to today’s topic, and boy, as usual it’s a controversial one : why I don’t like the Spoon Theory. To give you an idea of exactly how much I feel this, my working title was “Absolutely F*ck the Spoon Theory”.
If you don’t know about the Spoon Theory, you can find the original article explaining it by the creator, Christine Miserandino, at this link: https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
In summary, Miserandino invented the theory as a way to explain her experience with lupus. It’s an extended metaphor where spoons represent the energy one has available for various tasks, and then patients have to choose how to spend their limited spoons, compared to healthy people, who have a far greater number of spoons to start with. This is why you will often hear people with chronic illnesses referring to themselves as “Spoonies”. To be very clear, I don’t fault anyone who identifies with this metaphor or finds it useful. If it works for you, then feel free to use it.
But the Spoon Theory is absolutely not reflective of the life I choose to live, and it’s so widely espoused it’s becoming toxic for me. My problem has been that I have had so many counsellors and programs and therapists who have encouraged me to use this metaphor that is such an incredibly inaccurate representation of how my energy and life actually work that I feel burnt out from the whole thing. I’d love to know that I’m not the only one struggling with feeling like the most universally known metaphor for what I am supposedly experiencing is a complete contrast to my actual life.
Here’s my major issue with the Spoon Theory: there is a massive assumption that you have far more autonomy and freedom of choice over your life than you actually do.
Let’s say that someone gets 12 spoons in a day that they have to choose to use. Every task; cleaning, cooking, medical management, work, visiting friends, all take spoons, and you have to choose where to use them. The reality is, most of those choices are a total illusion. Your survival choices come first. For me, that’s work. I have to work to pay my bills and support myself. It’s not a choice, I’m not choosing to “put spoons towards it”.
Next, let’s look at medical management, one of the other massive “spoon stealers” in my life. Guess what- also not a choice! If I drop that ball, at best, I’ll be violently ill and at worst I’m risking serious allergic reaction, or permanent injury or something else. So here is yet another task that is exhausting, and awful, and daily, that there is no way I can get rid of or not spend energy on. At best, all I can do is try to stabilize my health the best I can and manage as much of it as I can on autopilot. But, as many of you know, health conditions are dynamic, and this is incredibly limited.
Let’s look at cooking and cleaning, and banking, and all of those little tasks that every person in the world like grocery shopping and renewing their driver’s licence, getting oil changes, paying taxes…and on and on and on! Again, none of these are choices! Guess what happens if you don’t clean or cook? These are not “optional activities” , they’re necessities of life. Your only real choice is to 1. Do it yourself or 2. Invest more energy into earning more money so you can pay someone else to do it. So once again, I am “choosing” to spend spoons on something that is not really a choice at all.
This in summary is my issue with the Spoon Theory: the illusion of choice in things that are not choice. You have no choice. No matter how much you are suffering, you have to push through and do certain things. There is no other option, so why would you hold onto a theory that suggests you have far more freedom than you do?
The only choice you have is how you spend the tiny bit of energy that is left. I don’t say that to be a pessimist- I say that to be a stoic. I don’t disagree that life is about choices, especially with chronic illness, but I think the Spoon Theory focuses on the wrong choices. What you’re actually choosing with the Spoon Theory is what consequence you want to face : do you want to exhaust yourself and feel terrible, or suffer the consequences of not doing the thing, which again, is not really truly a choice for any mandatory activity of life.
Here is what I use instead of the Spoon Theory, that works well for me:
- I don’t bother explaining my energy levels and abilities to people
The Spoon Theory was invented to try and explain what the experience of having lupus-related fatigue was like to someone without lupus. I’ve tried explaining the fatigue of my conditions to people, I really have, but it’s a wasted effort. Fatigue and energy are 100% subjective, and I don’t owe anyone an explanation. I’m not obligated to make people understand my experience, or educate them, or help them be more empathetic. That’s their choice. My conditions and disabilities make me tired, and not much can budge that tired, and that’s all anyone actually needs to know.
- Brutal Honesty
I don’t think I’m doing my medical team any favors when I present the impression to them that I have choices I don’t have. Rather than saying things like: “I need to work on pacing and planning and budgeting the energy I have,”, I say “I need more functional hours in a day. I have no choice but to work full time to maintain my benefits and my housing, and losing this would be more destructive to my health than anything else, and there are no more optional activities to cut and no way I can pace what I need to do.”
Yes, this is brutally harsh, and no, nobody has actually helped me with this. But at least I said it, and I’m not pretending that I have everything all together when I don’t.
- Stoicism
There’s a lot of wisdom in ancient philosophers, particularly some of the Greek Stoics regarding suffering, life and how to endure. I’ve found this far more useful than a lot of chronic illness type theories and ideas, which honestly, I felt like encouraged me to be a victim and just live in a world of illness. Disabled and chronic illness life is hard, but everybody’s life is hard in some way. Life involves suffering- rise up and face it, and give up trying to run away.
- Minimalism
Wow is this ever a work in progress. The people who know me in real life are laughing right now because they know this is currently not really a word to describe my life. But I’m working on it, and it does work. The more I can simplify and minimize my life, the more time, energy and space I have for the things I love and want to do.
- Romans 5:3-5
Not only so, but we also glory in our sufferings, because we know that suffering produces perseverance, perseverance, character; and character, hope. And hope does not put us to shame, because God’s love has been poured out into our hearts through the Holy Spirit, who has been given to us.
That pretty well sums it up. I need to stop trying to run from suffering, and embrace it and let it build perseverance and character in me. I haven’t found a whole lot in the Bible that espouses pacing out your work, budgeting energy, and worrying about getting it all done, but I have found a whole lot that assures us that Jesus provides for our needs and somehow it all works out. I realize that explanation doesn’t work for a lot of people, but you might have a similar spiritual belief that gives you the energy to get through.
So anyways, if anyone is looking for my “spoons”, I’ll be using them to eat ice cream, not budget out what I “get” to do in a day.